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The participant information and consent form are currently available in English only.

Please contact the research team if you need an explanation or translation before deciding whether to participate.

Participant Consent Form

Please read the study information and record your choices below. You must confirm every compulsory statement to join the research study. Optional choices will not affect your ability to take part.

Study details

Phase 1 — Digital Diary Study

Recognising Harm: Co-Designing Accountability in Facial Recognition Technologies

Lead researcher
Prof. Kyle Montague — kyle.montague@northumbria.ac.uk
Co-investigator
Dr Reem Talhouk — reem.talhouk@northumbria.ac.uk
Project collaborator
Dr Hannah Saunders, Face Equality International — hannah.saunders@faceequalityinternational.org
Ethics reference
#15450
Independent contact for concerns or complaints
Prof. Shaun Lawson, Northumbria University — shaun.lawson@northumbria.ac.uk

Participant Information Sheet

Participant Information Sheet: Phase 1 — Digital Diary Study, v1.0

We are inviting you to take part in a diary study about your experiences with facial recognition technology (FRT). This includes any technology that uses your face—to unlock devices, verify your identity, apply filters, or organise photos.

You have been invited because you identify as someone with a visible difference or facial disfigurement. We want to hear directly from people whose experiences are often overlooked in technology design.

We ask you to keep a diary of your experiences with facial recognition technology over the study period. Whenever you encounter FRT—whether it works, fails, or causes you difficulty—we'd like you to record your experience. You can write your entries using this app. There's no required number of entries—some days you might add several, other days none. The diary is flexible to fit your life. When you're ready, you can choose to share individual diary entries with our research team.

Participation is entirely voluntary. You can withdraw at any time without giving a reason. Any entries you haven't shared with us will remain private. If you withdraw, submitted records will be marked withdrawn and excluded from future exports and analysis. Information already anonymised, included in completed aggregate analysis, or published cannot be removed.

Your diary entries will help us understand the real-world impact of FRT on the facial difference community. We may quote from your entries in research outputs, but you will never be identified. All data will be stored securely and processed in accordance with data protection regulations. Diary entries stored on your device remain under your control.

Your participation will contribute to evidence that can drive change—helping technology companies and policymakers understand why FRT must be designed inclusively. This research is led by Northumbria University in partnership with Face Equality International.

Reflecting on negative experiences may bring up difficult feelings. You are in control of what you share and can stop at any time. If you need support, we can connect you with Face Equality International's community resources.

If you have any questions about this study, please contact the research team at kyle.montague@northumbria.ac.uk

Data protection information

I understand how Northumbria University will process my personal data, and that this information will be used only for the purposes set out in the Participant Information Sheet supplied to me. My consent to participate in this study is conditional upon the University complying with its duties and obligations under the Data Protection Act 2018, which incorporates the UK General Data Protection Regulation (UK GDPR). You can find out more about how we use your information in the Research Participant Privacy Notice.

Read the Visibly Invisible project privacy notice.

You have not yet joined the research study.

To join, please provide your name and a valid email address, and confirm all six compulsory statements. You can still use the diary privately; your entries will remain on this device and will not be sent to the research team.

Your details

Please provide your name and email address for the research consent record.

Your name and email address will be stored separately from any diary entries or other research contributions you make. We will use them only to maintain research consent records.

Compulsory — you must agree to all of these to take part

All six compulsory statements must be confirmed before you can enrol in the research study.

Optional choices

Tick any choices you are happy to agree to. Leaving any or all of these unticked will not prevent you from taking part.

REF (Research Excellence Framework) — optional

As a UK Higher Education institution, Northumbria University has an obligation to advance knowledge and education through its teaching and research. Research participants may be asked to provide feedback on the impact of our research to comply with the requirements of the REF. You can find out how we use your information in the Research Excellence Framework Impact Studies Privacy Notice.

By clicking ‘Submit’, I confirm that I am willing to take part in Phase 1 of this research study. Ticking the consent boxes and submitting this form is an equivalent record of my consent.

You can use the diary without joining the study

If you cannot or do not wish to confirm every compulsory statement, you can still use the diary privately. You will not be enrolled and the app will not send your diary entries to the research team.

Use the diary privately Return home
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